Author: The Marfan Foundation

The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.

The Marfan Foundation and Johns Hopkins Hospital Co-Host the 30th Annual Family Conference for People with Marfan and Related Disorders, July 10-13, in Baltimore

PORT WASHINGTON, NY, June 19, 2014 — The Marfan Foundation and Johns Hopkins Hospital are...

Announcements June 19, 2014February 26, 2021

Awards June 3, 2014February 26, 2021

The Marfan Foundation Receives High Ratings from Charity Navigator and Guidestar

PORT WASHINGTON, NY, June 3, 2014 -- The Marfan Foundation has been awarded Charity...

Announcements April 22, 2014February 26, 2021

The Marfan Foundation Raises $1 Million at its 14th Annual Heartworks Gala

PORT WASHINGTON, NY, April 18, 2014 -- The Marfan Foundation is thrilled to announce that it...

Know the Signs March 27, 2014February 25, 2021

Weight Gain and Marfan Syndrome – Why Can’t I Put On Weight?

Many people with Marfan syndrome have difficulty gaining weight, especially when they are...

Announcements March 26, 2014February 26, 2021

The Marfan Foundation Adds Experts to its Professional Advisory Board

PORT WASHINGTON, NY, March 26, 2014 – The Marfan Foundation is pleased to announce the addition...

Announcements February 6, 2014February 26, 2021

The Marfan Foundation to Honor Angela M. Sharkey, MD, Pediatric Cardiologist, at Heartworks St. Louis, March 1

PORT WASHINGTON, NY, February, 6, 2014 – Angela M. Sharkey, MD, Pediatric Cardiologist at SSM...

Announcements January 29, 2014February 26, 2021

President & CEO of The Marfan Foundation Announces Two-Year Transition Plan Leading to Her Retirement

It was exactly 20 years ago that I embarked on the most rewarding journey in my professional life,...

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