The Marfan Foundation is Deeply Offended by VEEP for Using “Marfan Syndrome” as a Disparaging Remark
The Marfan Foundation is deeply offended by the highly acclaimed HBO program, VEEP, and its...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
RENT Cast Members from the Past 20 Years to Perform at New York City Heartworks to Honor Jonathan Larson
Daphne Rubin-Vega, Fredi Walker-Brown, and Tony Award winner Wilson Heredia lead a group of two...
Congressional Representatives Take Steps Towards Enhanced Athletic Screening
Earlier this week, Maryland Congressman Chris Van Hollen and Congressman Mike Fitzpatrick (R-PA)...
The Marfan Foundation to Honor Weill Cornell Medicine Cardiac Team and Jonathan Larson, the Late RENT Playwright, with Hero with a Heart Award at April 14 Benefit
The Marfan Foundation is honoring the Weill Cornell Medicine Cardiac Team – Drs. Richard...
The Marfan Foundation Makes an Impact on Capitol Hill
On January 13, The Marfan Foundation was highlighted on Capitol Hill with a most impressive...
The Marfan Foundation to Honor Surgeon Dr. Charles Huddleston and Community Leaders Robert and Donna Plummer at Heartworks St. Louis on March 5
Charles Huddleston, MD, Professor of Surgery at St. Louis University School of Medicine and SSM...
New Mobile App for Healthcare Professionals Facilitates Diagnosis of Marfan Syndrome and Related Disorders
The Marfan Foundation announced today the launch of Marfan DX, a mobile phone application to aid...
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