Julie Kurnitz’s Marfan Story Gives Hope to Others
Ten years ago, we lost a dear member of our community, Julie Kurnitz. Julie served on our Board of...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Receives RARE Champion of Hope – Collaborations in Advocacy Award from Global Genes
Global Genes honors the pioneering achievements of individuals andcorporations in the rare disease...
The Marfan Foundation Lauds NBA for Screening that Detects Marfan Syndrome, a Life-Threatening Condition, in Potential First Round Draft Pick
PORT WASHINGTON, NY, June 22, 2014 -- The Marfan Foundation lauds the NBA for its thorough...
The Marfan Foundation and Johns Hopkins Hospital Co-Host the 30th Annual Family Conference for People with Marfan and Related Disorders, July 10-13, in Baltimore
PORT WASHINGTON, NY, June 19, 2014 — The Marfan Foundation and Johns Hopkins Hospital are...
The Marfan Foundation Receives High Ratings from Charity Navigator and Guidestar
PORT WASHINGTON, NY, June 3, 2014 -- The Marfan Foundation has been awarded Charity...
The Marfan Foundation Raises $1 Million at its 14th Annual Heartworks Gala
PORT WASHINGTON, NY, April 18, 2014 -- The Marfan Foundation is thrilled to announce that it...
Weight Gain and Marfan Syndrome – Why Can’t I Put On Weight?
Many people with Marfan syndrome have difficulty gaining weight, especially when they are...
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