Generational Care Provides Continuity
Debra Theine has experienced Marfan syndrome’s impact as a daughter, patient, mother, and...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Don’t Miss Upcoming Foundation Events: Save the Dates!
No need for FOMO! We've got you covered with a preview of so many great Foundation offerings on...
Marfan.org Offers Multilingual Access: Now available in over 25 languages
Explore Marfan.org, the primary hub for patient education on Marfan syndrome, now accessible in...
The Cruz Family
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
Miracles Run In My Family
My father, my brother, and I each had aortic root and valve replacements at 26 years old. Anyone...
Let’s Just Get Checked Out
I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...
Foundation Announces $500,000 In New Research Grants
Thanks to the generosity of our supporters, the Foundation awarded five new research grants. These...
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