Jewelry Designer Living with Marfan Creates Necklace to Commemorate Awareness Month
A Los-Angeles-based jewelry designer and member of the Marfan community has created a specially...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
VEDS Teams are Historic Top 3 at 2024 Tampa Walk for Victory
For the first time in The Marfan Foundation's Walk for Victory (WFV) history, the top three...
Submit Videos: #marfanrealreels
Marfan Awareness Month 2024 is just around the corner in February. This year, we want to tell your...
Register Now for January Spanish-Language Summit
Registration is now open for the Third Spanish-Language Summit, featuring information about...
Generational Care Provides Continuity
Debra Theine has experienced Marfan syndrome’s impact as a daughter, patient, mother, and...
Don’t Miss Upcoming Foundation Events: Save the Dates!
No need for FOMO! We've got you covered with a preview of so many great Foundation offerings on...
Marfan.org Offers Multilingual Access: Now available in over 25 languages
Explore Marfan.org, the primary hub for patient education on Marfan syndrome, now accessible in...
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