A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Foundation Receives Mental Health Impact Grant from Global Genes
The Marfan Foundation is honored to receive a grant from Global Genes to support mental health...
Registration is Open for The Marfan Foundation’s 39th Conference in Chicago, July 13-16
The Marfan Foundation, in conjunction with Ann & Robert H. Lurie Children's Hospital of...
The Marfan Foundation to Honor Reed E. Pyeritz, MD, PhD, and Sanjeev Bhalla, MD, at Heartworks St. Louis, March 11
The Marfan Foundation is honored to present Reed E. Pyeritz, MD, PhD, with a Lifetime Achievement...
The Marfan Foundation Announces Board Chair-Elect
The Marfan Foundation is honored to announce that Bert Medina has been named chair-elect...
February is Marfan Awareness Month
Spreading Awareness Across the Globe The Foundation is dedicated to spreading Marfan...
Statement on Aortic Aneurysm Reflecting on the Death of Grant Wahl: Clinical Urgency and Guidance
The Marfan Foundation is saddened to learn that journalist Grant Wahl has died due to...
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