Register for our 40th Conference
We are thrilled to invite you to the 40th Marfan Foundation Conference, happening July...
Category: Announcements
The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
“Together, We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness
"Together, we are stronger!" Marfan Europe Network (M.E.N.) and Contactgroep Marfan...
Recent Symposiums Deepen Connections & Knowledge
Three symposiums were held this autumn geared toward helping community members connect with one...
Connect With Community Your Way
The Foundation's schedule of events during fall and early winter offers so many chances to connect...
Camp Victory 2024 Brings Smiles
Six years ago, the Foundation began offering Camp Victory to provide a fun, safe environment where...
Marfan Awareness Month 2024 Wins PR Daily Awards for Social Media & Engagement, Innovation Mention
Thanks to the heartfelt and diverse ways in which our community members shared their everyday...
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