Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS
Co-presented by our friends from Annabelle's Challenge, Marfan Trust, The Aortic Dissection...
Category: Announcements
Foundation Volunteers Convene Expert Group that Releases First-Ever AHA Pediatric Aortopathy Scientific Statement
August 12th, 2024, became a historic day for the genetic aortic and vascular conditions...
Welcome Nurse Stephanie
The Marfan Foundation is pleased to welcome Stephanie Amdur-Clark, our new Help and Resource...
StuffThatWorks and The Marfan Foundation to Engage in Pilot Program
Joint efforts will form best practices for non-profit health organizations to leverage patient...
Global Virtual Conference 2024 Kicks Off
With a global virtual audience including participants who introduced themselves in chat from...
Marfan Foundation: A May of Self-Care & Thanks During Mental Health Awareness Month 2024
During Mental Health Awareness Month (and every day!), we're here to help empower you to live your...
Help & Resource Center Director Jan Lynch Moving to Part-Time Role, Foundation Will Expand Center Staff Team
Director of The Marfan Foundation's Help & Resource Center Janice "Jan" Petrella Lynch, MSN,...
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