Attend an Event
The Marfan Foundation hosts many events throughout the year to raise awareness of Marfan syndrome and related conditions, and to raise critical funds to support our mission. Events include formal HeartWorks Galas, family-friendly Walks for Victory events, cocktail hours, and local events arranged by volunteer leaders.
Educational events include our four-day conference and various regional symposia. These opportunities bring together individuals, families, and medical experts for information and support for the Marfan, Loeys-Dietz, VEDS, and related conditions community.
HeartWorks Gala
Founded 25 years ago by former Board Chair Karen Murray, the first HeartWorks was a small event held at a fashion showroom in New York City. Since then, HeartWorks has become a star-studded event in some of the most exquisite locations in New York and has expanded to other cities, including St. Louis, Houston, and Chicago.
The galas provide an opportunity to recognize members of our community. We have honored many of the world’s leading medical experts on Marfan, Loeys-Dietz, and VEDS, business leaders, and other volunteers who have made significant contributions to advance the Foundation’s mission. Each event also provides an intimate look into the lives of those affected, raising awareness and creating impact.
Since its inception, HeartWorks has raised more than $15 million through corporate support, community leadership, and participation. This funding is critical to the Foundation’s programs and services, which include education, patient support, and research.
Interested in supporting a special event with a sponsorship, donation, or auction item?
Please contact Kara Burke at kburke@marfan.org or Alyssa Aiello at aaiello@marfan.org.
Voices for Victory
HeartWorks New York City
Founded in 1998 by former Board chair Karen Murray, HeartWorks New York City is our signature special event that has featured incredible performances from Broadway legends, honored world-class medical experts, and raised critical funds to support our mission. This is a one-of-a-kind event you don’t want to miss!
25th Anniversary HeartWorks NYC
HeartWorks St. Louis
HeartWorks St. Louis was established in 2009 by Dr. Alan Braverman and his wife, Rebecca. A member of the Foundation’s Professional Advisory Board and Board of Directors, Dr. Braverman is a world-renowned medical expert on Marfan syndrome and related conditions. Join the St. Louis community as we come together to further advance the life-saving work of The Marfan Foundation.
HeartWorks Houston
Established in 2021 by Dr. Joseph Coselli and his wife, Kelly, the Houston HeartWorks gala is a true partnership supported by volunteers and many hospitals in the Houston area. Join us as we come together to honor deserving individuals who have made significant contributions to our community, enjoy live music and dancing, and participate in our exciting live and silent auctions.
HeartWorks Chicago
HeartWorks Chicago held its inaugural event in 2022, and over our first two years, we have had tremendous nights – with sold-out rooms that enjoyed amazing live bands, fun live auctions, and incredible fundraising success. Our volunteer leaders have shown their relentless commitment to the Foundation’s mission with our hospital partners, Children’s Alliance of Chicagoland, Northwestern Medicine, and Robert & Ann Lurie Children’s Hospital.
Memorable Moments Luncheon
Inaugural Memorable Moments Luncheon
14 E 60th St, New York, NY 10022
The Memorable Moments Luncheon is a special event designed to highlight and celebrate significant programs that make a difference in the community: Led by Co-Chairs Alix Jennings & Barbara Lerman, This luncheon aims to bring together supporters, volunteers, and stakeholders to share in the impact these initiatives have had and continue to have in the community. Throughout the event, attendees will learn about the successes, stories, and future goals of these programs, while enjoying a memorable and inspiring gathering. The luncheon promises to be an opportunity for connection, reflection, and hope, as well as a way to support and celebrate these important causes.
UnCorked & Evening with Heart
Don’t miss out on wonderful opportunities to get together for a fun evening event while raising funds and awareness for The Marfan Foundation and its divisions.
Event News
- Register for our 40th Conference
We are thrilled to invite you to the 40th Marfan Foundation Conference, happening July 10-13 at the Hyatt Regency Atlanta. Hosted… Read more: Register for our 40th Conference - Recent Symposiums Deepen Connections & Knowledge
Three symposiums were held this autumn geared toward helping community members connect with one another and with the experts. The… Read more: Recent Symposiums Deepen Connections & Knowledge - Connect With Community Your Way
The Foundation’s schedule of events during fall and early winter offers so many chances to connect with community, both in-person… Read more: Connect With Community Your Way
Looking for Other Events?
The Marfan Foundation hosts events that provide people living with Marfan syndrome, VEDS, Loeys-Dietz, and related conditions, and their families, opportunities to connect with the community, learn the latest research information, and spread awareness at various locations around the country.
We’d love to see you there! For more information, visit the links below.
Upcoming Events
We hold many events from coast to coast throughout the year to raise awareness of Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions, and to raise critical funds to support our work.
Events for February
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Events for April
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Michigan Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS
Northern California Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS
