StuffThatWorks and The Marfan Foundation to Engage in Pilot Program
Joint efforts will form best practices for non-profit health organizations to leverage patient...
News from
The Marfan Foundation
La inscripción ya está abierta para el Simposio Regional en Puerto Rico: Mejorando Su Vida con Marfan, Loeys-Deitz y VEDS
La Fundación Marfan continúa su compromiso de expandir los programas ofrecidos en español con...
Global Virtual Conference 2024 Kicks Off
With a global virtual audience including participants who introduced themselves in chat from...
“It Makes Us Part of Something.” Global Virtual Conference Deepens Connections & Knowledge
Marta Dias of Lisbon, Portugal sees the Foundation's 2024 Global Virtual Conference as a unique...
Marfan Foundation: A May of Self-Care & Thanks During Mental Health Awareness Month 2024
During Mental Health Awareness Month (and every day!), we're here to help empower you to live your...
Living Better with Marfan, LDS, and VEDS Around the World: The Marfan Foundation’s Outreach to the Global Community
This year, we are taking our one-day symposiums to Europe with partner organizations to help...
Help & Resource Center Director Jan Lynch Moving to Part-Time Role, Foundation Will Expand Center Staff Team
Director of The Marfan Foundation's Help & Resource Center Janice "Jan" Petrella Lynch, MSN,...
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