Tag: Marfan
Support for Parents/Guardians of Children with Early-Onset (Neonatal) Marfan Syndrome
Are you a parent or guardian of a child with early onset (previously called neonatal or infantile)...
Camp Victory for Families: Georgia 2025
Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS,...
Camp Victory for Kids: Georgia 2025
Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...
Camp Victory for Kids: California 2025
Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...
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Together, We Can Know the Signs
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