Tag: Marfan

“Together, We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness

"Together, we are stronger!" Marfan Europe Network (M.E.N.) and Contactgroep Marfan...

Announcements, News February 10, 2025February 15, 2025

February 5, 2025February 18, 2025

Northern California Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS

...

January 22, 2025January 22, 2025

Your Eyes and Stickler Syndrome: What You Need to Know

...

December 12, 2024December 12, 2024

Support for Parents/Guardians of Children with Early-Onset (Neonatal) Marfan Syndrome

Are you a parent or guardian of a child with early onset (previously called neonatal or infantile)...

December 12, 2024March 12, 2025

Camp Victory for Families: Georgia 2025

Join us for this exciting opportunity to meet other families impacted by Marfan, VEDS,...

December 12, 2024March 13, 2025

Camp Victory for Kids: Georgia 2025

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...

December 12, 2024March 13, 2025

Camp Victory for Kids: California 2025

Don’t miss out on this opportunity for your child/children, ages 7-16, to attend Camp Victory...

Together, We Can Know the Signs
and Fight for Victory

View all Divisions

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Stay Connected on Social Media

Have a question? We can help.

Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory