Know the Signs, Fight for Victory

Don’t Miss Upcoming Foundation Events: Save the Dates!

No need for FOMO! We’ve got you covered with a preview of so many great Foundation offerings on the horizon. Save the dates! And remember: our calendar is always a great additional resource for support groups, events, and all Foundation happenings — virtual and in-person.

Our Virtual Global Conference will take place during the week of June 16, 2024. Our national in-person health fair location and date are TBD. Please stay tuned for details on both.

The virtual Spanish-Language Summit is coming up fast on January 20! Register today! Join our Board Chair Bert Medina and community experts for this virtual event. Todas las presentaciones serán en español.

Join us for a Walk for Victory. Check for ongoing updates at
View the full schedule here. Come out to be with your Foundation framily. WFV is all about being together!

February 3 – Southern California (Costa Mesa) 

March 2 – Houston 

March 3 – Phoenix 

May 4 – Northern California (Aptos) 

May 12 – Portland 

May 18 – Pittsburgh 

May 19 – Denver 

June 1 – Boston

June 8 – Chicago

June 15 – Milwaukee

June 15 – Philadelphia

June 22 – Des Moines

Attend a Symposium. Hear from the experts on the latest in genetic aortic and vascular condition breakthroughs. Learn about living better with Loeys-Dietz syndrome, Marfan syndrome, VEDS, and related conditions. Enjoy time with community.

April 13 – Austin Symposium

May 11 – Portland Symposium

Glitter at a gala event. Our galas are opportunities to enjoy a brilliant evening with friends, colleagues, and family. Gala events raise awareness and funds to support our mission in a more formal setting. Learn more at

February 23 – Chicago Heartworks Gala, The Fairmont  

February 29 – UnCorked, New York City 

April 27 – St. Louis Heartworks Gala, The Four Seasons  

May 21 – New York City Heartworks Gala, The Rainbow Room 

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The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.

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