A Message from Michael Weamer, President & CEO of The Marfan Foundation
As you might imagine, this is a very fluid time for the Foundation. Changes are literally...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation to Hold 12th Annual Heartworks St. Louis Gala on March 14
The Marfan Foundation will honor D. Michael Nelson, MD, PhD, the Virginia S. Lang Professor of...
The Marfan Foundation Launches Inaugural Virtual Walk for Victory
This year, more than 3,000 people are expected to participate in The Marfan...
Announcing the #MarfanVictoryChallenge!
February is Marfan Awareness Month, a time for all of us in the community to escalate our efforts...
#VictoryToday
On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...
The VEDS Movement Launches TheVEDSMovement.org
The VEDS Movement, a new division of The Marfan Foundation, is excited to announce the launch of...
Foundation Launches 2020 in 2020 Backpack Health Campaign to Increase Participation in Patient Registry
The Marfan Foundation is announcing 2020 in 2020 Backpack Health Campaign, a challenge to its...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
