Beauty Enthusiast Overcomes Obstacles
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
La Fundación Marfan estará proporcionando traducciones al español, en vivo para varias sesiones durante su conferencia virtual anual, del 8 al 11 de julio de 2021
La Fundación Marfan estará proporcionando traducciones al español, en vivo para varias sesiones...
The Marfan Foundation to Honor the Legacy of Ann Reinking at Heartworks Across America on June 24
Heartworks Across America, The Marfan Foundation’s signature event, will pay special tribute to...
The Marfan Foundation to Honor Dr. James Black, Dr. Firas Mussa, Barbara Lerman, CPA, and the Legacy of Ann Reinking at Heartworks Across America on June 24
Heartworks Across America, The Marfan Foundation’s signature event, will honor two incredible...
Losing My Sight Saved My Life
Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...
Spring into Community Connections, Support, and Education Opportunities
The Spring calendar is full at The Marfan Foundation, with myriad opportunities for everyone with...
Upcoming Clinical Trial Announced for Vascular Ehlers-Danlos Syndrome
Today, Aytu BioPharma announced their intention to conduct a drug therapy trial for...
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