Three Keys to a Positive Outcome
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Tick, Tick… Boom! On Netflix Continues the Legacy of Jonathan Larson
Nearly 25 years after Jonathan Larson lost his life to an undiagnosed aortic dissection, believed...
The Marfan Foundation Launches New Website
The Marfan Foundation launched its new website (marfan.org) today to make medical information...
The Marfan Foundation Names Andrew Toy an Advisor to its Board of Directors
The Marfan Foundation is pleased to announce the addition of Andrew Toy, President and Chief...
Marfan Fact Sheets Now Available in French, German, and Italian
The Marfan Foundation is expanding its resources to make them accessible to people who speak...
The Marfan Foundation Announces Updated Research Grant Program to Facilitate Transformational Science
The Marfan Foundation, which has funded 158 in research grants and initiatives since 1989, is...
50th Annual NYC Marathon
It's official! On November 7, 2021, 33,000 people will run the 50th Annual NYC Marathon, and we...
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