Foundation Launches 2020 in 2020 Backpack Health Campaign to Increase Participation in Patient Registry
The Marfan Foundation is announcing 2020 in 2020 Backpack Health Campaign, a challenge to its...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Awards $775,000 in Research Grants
The Marfan Foundation is proud to announce that it is awarding $775,000 to eight...
The Marfan Foundation Adds Vascular Ehlers-Danlos Syndrome Division
The Marfan Foundation, which saves lives and improves the quality of life for people with Marfan,...
Working with Your School Nurse
For parents of a child with a connective tissue condition, worrying is a daily habit. The...
Working With Your School Nurse
For parents of a child with a connective tissue condition, worrying is a daily habit. The...
The Marfan Foundation Launches Volunteers for Victory
When volunteers lead the way, great things happen! After hearing from many in our community...
Recording of Conference Medical Presentations Now Available
This year, for the first time, the Foundation livestreamed the medical presentations that were...
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