Lifesaving Education
There are few things stronger than a mother’s intuition. The strength of this “knowing” is...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
We Found Our Family
For most people, family is the first group of people we know and trust. Newborn babies know their...
The Marfan Foundation Awards $750,000 in Research Grants
The Marfan Foundation is awarding $750,000 for its 2018 research grants on Marfan syndrome and...
Thank You to 2017-2018 Walk for Victory Participants
Three hundred and sixty-five days ago, Walk for Victory swept the country in 14 cities touching...
The Marfan Foundation Raises $1.2 Million at HeartWorks 2018 Gala to Support Life-Saving Programs and Services for People with Marfan and Related Disorders
PORT WASHINGTON, NY, May 23, 2018 -- The Marfan Foundation announced today that it raised $1.2...
The Marfan Foundation and Backpack Health: Frequently Asked Questions
The Marfan Foundation announced that, starting today, it is making a new app available for free to...
The Marfan Foundation Makes New Healthcare Management Tool Available Free of Charge to the Marfan Syndrome and Related Disorders Community
Unique Tech Platform from Backpack Health Offers First-Ever Mobile App Customized for Marfan...
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