Survey Results Reveal Greatest Obstacles to Quality of Life
In a survey conducted by The Marfan Foundation to identify the quality of life issues in the...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Newly Diagnosed? Veterans in the Marfan Community Offer Advice
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a...
Sydney Lerman Pediatric Hospitality Program is Launched
The Marfan Foundation is proud to announce the official launch of the Sydney Lerman Pediatric...
Sydney Lerman Pediatric Hospitality Program: Join Sydney and Carly in Giving Back
Sydney Lerman, of Westchester, NY, is a smart, fun-loving, and spirited daughter, sister, cousin,...
The Marfan Foundation Partners with American Medical ID to Empower Patients in an Emergency
The Marfan Foundation is partnering with leading medical identification...
The Marfan Foundation Honors Heidi M. Connolly, MD, with 2017 Antoine Marfan Award
Heidi M. Connolly, MD, Director of the Congenital Heart Center and Adult Congenital Heart Disease...
The Marfan Foundation Earns Coveted 4-Star Rating From Charity Navigator
The Marfan Foundation’s strong financial health and commitment to accountability and...
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