The Marfan Foundation Statement on Marfan Diagnosis of NBA Prospect
In light of the Marfan diagnosis of French basketball center Jonathan Jeanne, who was...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Raises More Than $1.2 Million at Heartworks Gala to Support Life-Saving Programs and Services
The Marfan Foundation announced today that it raised more than $1.2 million last night at its 17th...
Marfan and Related Conditions Community Invited to Participate in Hill Day
The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome...
Introducing New Staff to Enhance Help & Resource Center and Volunteer Services
The Marfan Foundation is pleased to announce the addition of two staff members who will play a...
The Marfan Foundation Announces Honorees for Heartworks Gala
The Marfan Foundation is honoring Karen Murray, the recently named CEO of Sequential Brands Group,...
Boston Symposium: Making Life-Changing Connections for Children and Teens
On April 8, 2017, Dr. Ron Lacro, Director, Cardiovascular Genetics Clinic, and Associate in...
Legislative Action Alert: Urge Responsible Healthcare Reform
The 115th Congress and the incoming administration have made it a priority to “repeal and...
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