The Marfan Foundation’s Ongoing Commitment to VEDS Research
The Marfan Foundation and its VEDS Movement division have a longstanding history of supporting...
Author: The VEDS Movement
The VEDS Movement mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS).
Why the “V” Matters to Me: Living with VEDS – Vascular Ehlers-Danlos syndrome
"Our experiences matter, our futures matter, and our lives matter..." VEDS Movement...
VEDS Took Center Stage as the Marfan Foundation Convened the World’s Best Scientists in Barcelona
Scientists around the globe are working tirelessly on behalf of the VEDS community to advance...
Thank You VEDS Community: Annual Houston VEDS Party & Walk for Victory
A gratitude-filled reflection from VEDS Movement Director Ryan Rodarmer, MS Ryan Rodarmer,...
Behavioral Health and Concurrent Chronic Illness: A Call to Action
ADVISORY: This post discusses depression, addiction, and loss. Guest blogger Rosanne...
Today is VEDS Action Day
Please note: this story discusses and depicts emergency medical experiences. Guest...
Stronger Together
A reflection from The VEDS Movement as The Marfan Foundation approaches its 40-year...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
