Category: Awareness

Awareness November 1, 2017February 25, 2021

Survey Results Reveal Greatest Obstacles to Quality of Life

In a survey conducted by The Marfan Foundation to identify the quality of life issues in the...

Awareness, Events May 11, 2017February 9, 2022

Marfan and Related Conditions Community Invited to Participate in Hill Day

The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome...

Awareness, Events February 10, 2017February 25, 2021

Legislative Action Alert: Urge Responsible Healthcare Reform

The 115th Congress and the incoming administration have made it a priority to “repeal and...

Awareness, Events January 31, 2017February 25, 2021

The Marfan Foundation Launches Marfan Awareness Month on February 1 with Multi-pronged #IKNOWMARFAN Campaign

Social media and grassroots events planned to raise awareness of the signs of Marfan and related...

Awareness, Events June 2, 2015February 26, 2021

You Can Help Increase Federal Research Funding: Take Action Now

Due to sequestration (spending cuts) and flat budgets in recent years, the National Institutes of...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory