Mercy Asylum: Creating VEDS Awareness One Scare at a Time!
What do you get when you mix a passion for paying it forward, with a love for haunted houses, and...
Category: News
Connect With Community Your Way
The Foundation's schedule of events during fall and early winter offers so many chances to connect...
Marfan Awareness Month 2024 Wins PR Daily Awards for Social Media & Engagement, Innovation Mention
Thanks to the heartfelt and diverse ways in which our community members shared their everyday...
The Marfan Foundation announces alignment with global Think Aorta campaign to amplify key life-saving messages, starting with Aortic Dissection Awareness Week 2024 (9/19 – 9/26)
Aims to save more lives through rapid ID of symptoms and urgent CT scan diagnoses The...
Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS
Co-presented by our friends from Annabelle's Challenge, Marfan Trust, The Aortic Dissection...
TromsoAorta 2024 Convenes Scientists, Sparks Hope
This week, leading experts from around the world came together for a joint meeting of the GenTAC...
Social Security’s Expanded Compassionate Allowances Matter for Families Living with Neonatal Marfan Syndrome
On August 12, the Social Security Administration (SSA) announced an update to its compassionate...
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