The Time to Act Is Now: A Joint Call to Prevent the Next Aortic Tragedy
The deaths of U.S. Senator Lindsey Graham, Congressman Doug LaMalfa, and bestselling...
News from
The Marfan Foundation
Aortic Dissection Awareness: 30 Years After Rent, Cast Reunion Reignites Jonathan Larson’s Life-Saving Legacy
When 13 of the original 15 Rent cast members reunited on a festival stage in Kingston, NY,...
Eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness Week 2026
Goal: Raising awareness through storytelling, education and collective action For Media...
Meet Monty: New Resource Aims to Help More Teachers Understand Marfan Syndrome in the Classroom
Students living with Marfan syndrome are more than their diagnoses - they are vibrant young...
The Marfan Foundation Mourns the Passing of Co-Founder Dr. Reed Pyeritz
The Marfan Foundation shares with deep sorrow that on Monday, August 10, 2026, we lost...
Marfan Foundation President and CEO Michael Weamer Receives Metro NYSAE Lifetime Achievement Award
The Marfan Foundation is pleased to share that President and CEO Michael L. Weamer has been...
Be With Your Marfan Foundation Family: Walk for Victory 2026-2027
"Everyone there just gets it." That's the number thing we...
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