2025 Marfan and Loeys-Dietz Awareness Months Reach 990K People
Thanks to the outstanding support of our community members, Marfan Awareness Month and...
News from
The Marfan Foundation
Experts Look Forward to the Marfan Foundation’s July 2025 Atlanta Conference
The Marfan Foundation, in association with Children’s Healthcare of Atlanta, Emory...
Marfan in the News: Boomer & Gio in the Morning on WFAN Sports Radio
We were grateful for a spur-of-the moment chance to share some quick facts about Marfan...
Register for our 40th Conference
We are thrilled to invite you to the 40th Marfan Foundation Conference, happening July...
The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
“Together, We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness
"Together, we are stronger!" Marfan Europe Network (M.E.N.) and Contactgroep Marfan...
Help & Resource Center FAQs: Top 5 Questions Answered:
Started in 1992, the Foundation’s Help & Resource Center reaches more than 5,000 people...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
