Beyond the Aorta: Dissections Throughout the Body
When people hear the words “dissection,” they often think of the aorta. It’s the...
News from
The Marfan Foundation
A World Community Comes Together: Marfan Foundation 2026 Global Virtual Conference
The Marfan Foundation’s 2026 Global Virtual Conference connected individuals and families from...
A New Era in Loeys-Dietz Syndrome: Personalized Care for a Complex Condition
More than two decades after Loeys-Dietz syndrome (LDS) was first identified, an updated...
Rosemarie Nania: VEDS advocate, and community “Hero with a Heart”
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
Marfan and Loeys-Dietz Awareness Months Reach Nearly 1.2 Million People with Life-Saving Awareness, Raise Essential Funds
The results are in: during Marfan and Loeys-Dietz Awareness Months 2026, the...
Team Victory Goes the Distance at the Paris Marathon
This spring, in the heart of Paris, twelve women from across the U.S. came together...
The Marfan Foundation’s Global Reach, Lifesaving Impact
From European fundraising marathons to major international meetings, we’re advancing...
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