New Physical Activities Resource Now Available
The Marfan Foundation is now offering a new resource featuring physical activity guidelines for...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
Survey Results Reveal Greatest Obstacles to Quality of Life
In a survey conducted by The Marfan Foundation to identify the quality of life issues in the...
Newly Diagnosed? Veterans in the Marfan Community Offer Advice
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a...
Sydney Lerman Pediatric Hospitality Program is Launched
The Marfan Foundation is proud to announce the official launch of the Sydney Lerman Pediatric...
Sydney Lerman Pediatric Hospitality Program: Join Sydney and Carly in Giving Back
Sydney Lerman, of Westchester, NY, is a smart, fun-loving, and spirited daughter, sister, cousin,...
The Marfan Foundation Partners with American Medical ID to Empower Patients in an Emergency
The Marfan Foundation is partnering with leading medical identification...
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