Marfan Foundation Ranked #5 Best Nonprofit to Work for in 2026
Placed Highest in Foundation History, Chosen Among 50 Best Nationally by NonProfit...
Author: The Marfan Foundation
The Marfan Foundation drives research, education and support – and builds community – to improve outcomes, save lives and empower all people to thrive who are living with Marfan, Loeys-Dietz, Vascular Ehlers-Danlos syndromes, and related genetic aortic and vascular conditions.
“Alone we are rare, together we are strong!”: Rare Disease Day Advocacy 2026
Director Loeys-Dietz and Marfan for the Marfan Foundation Stacey Watson shares her...
New Book “Making Rent” Aims in Part to Raise Awareness of Marfan Syndrome
Broadway pioneer, musical director of Rent, author of new book, Making Rent, and friend of...
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
A mom’s perspective on life in the Philippines with early-onset Marfan syndrome
Penelope shared her first-person story for Marfan Awareness Month. Hi! My name is...
The Marfan Foundation Named a Top Place to Work in Communications
For the first time in its history, the Marfan Foundation has been named a Top Place to Work in...
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