Meet a Marfan Researcher – Silvia Smaldone, PhD
One of the most satisfying aspects of being part of this community is meeting the people who work...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Offers Clinical Trial FAQs and Webinar to Clarify Latest Research Findings
The Marfan Foundation now offers a comprehensive list of frequently asked questions (FAQs) with...
Losartan Shown to be Effective in the Treatment of Marfan Syndrome; New Option for Patients
The Marfan Foundation Statement People with Marfan syndrome now have expanded therapeutic...
Adopt-A-School Victory Challenge Mini iPad Winner
This fall, we held the Adopt-A-School Victory Challenge to encourage parents, guardians,...
Boston Celtics to Hold Marfan Night at Home Opener, October 29, Against the Brooklyn Nets; Buy Tickets Now
Marfan syndrome will be at center court at the TD Garden in Boston on October 29, as the Boston...
Julie Kurnitz’s Marfan Story Gives Hope to Others
Ten years ago, we lost a dear member of our community, Julie Kurnitz. Julie served on our Board of...
The Marfan Foundation Receives RARE Champion of Hope – Collaborations in Advocacy Award from Global Genes
Global Genes honors the pioneering achievements of individuals andcorporations in the rare disease...
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