The Marfan Foundation Receives High Ratings from Charity Navigator and Guidestar
PORT WASHINGTON, NY, June 3, 2014 -- The Marfan Foundation has been awarded Charity...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Raises $1 Million at its 14th Annual Heartworks Gala
PORT WASHINGTON, NY, April 18, 2014 -- The Marfan Foundation is thrilled to announce that it...
Weight Gain and Marfan Syndrome – Why Can’t I Put On Weight?
Many people with Marfan syndrome have difficulty gaining weight, especially when they are...
The Marfan Foundation Adds Experts to its Professional Advisory Board
PORT WASHINGTON, NY, March 26, 2014 – The Marfan Foundation is pleased to announce the addition...
The Marfan Foundation to Honor Angela M. Sharkey, MD, Pediatric Cardiologist, at Heartworks St. Louis, March 1
PORT WASHINGTON, NY, February, 6, 2014 – Angela M. Sharkey, MD, Pediatric Cardiologist at SSM...
President & CEO of The Marfan Foundation Announces Two-Year Transition Plan Leading to Her Retirement
It was exactly 20 years ago that I embarked on the most rewarding journey in my professional life,...
New Resources Help Patients Compare Out-of-Pocket Insurance Costs in Marketplace Coverage
Washington, D.C. – To help consumers understand their out-of-pocket healthcare costs as they...
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