President & CEO of The Marfan Foundation Announces Two-Year Transition Plan Leading to Her Retirement
It was exactly 20 years ago that I embarked on the most rewarding journey in my professional life,...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
New Resources Help Patients Compare Out-of-Pocket Insurance Costs in Marketplace Coverage
Washington, D.C. – To help consumers understand their out-of-pocket healthcare costs as they...
5 Things You Can Do for Marfan Awareness Month
Do you still get blank stares from people when you say that you have Marfan syndrome? How many...
The First 6 Things You Should Do When Diagnosed with Marfan Syndrome
It’s the beginning of the new year. Is it the beginning of your Marfan journey? If you just...
New York Times Puts the Spotlight on Progress in Marfan Research
In the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than...
Four Questions to Ask Your Family Over the Holidays
When is the most common time of the year for families to get together under one roof? That's...
14th Annual Tommy Tant Memorial Surf Classic benefits The Marfan Foundation
The 14th Annual Tommy Tant Memorial Surf Classic presented by Nautica returns to Flagler Beach,...
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