New Survey Finds One in Five Patients Had Surgery Before Diagnosis
One in five people with Marfan syndrome had some form of surgery before they were diagnosed with...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Health Insurance Marketplace: New Options for Accessible, Affordable Healthcare
Many people in our Marfan syndrome and related disorders agree: securing affordable healthcare is...
School’s in Session: What Better Time to Adopt a School!
If you have school-aged children with Marfan syndrome or a related disorder, you know how...
Aging with Marfan Syndrome: 5 Common Questions
Well, for many people, this just brings up more questions. Living longer is great, but aging comes...
vic • to • ry
[vik-tuh-ree, vik-tree] A success or superior position achieved against any opponent,...
Blood Test on the Horizon to Detect Aortic Aneurysm and Dissection as Researchers Identify Key Biomarkers Associated with Lethal Condition
A team of investigators has developed an innovative blood test that may provide a faster, simpler...
Common Blood Pressure Drug Reduces Aortic Enlargement in Marfan Syndrome
A common drug that is used to treat high blood pressure in the general population has been found...
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