The First 6 Things You Should Do When Diagnosed with Marfan Syndrome
It’s the beginning of the new year. Is it the beginning of your Marfan journey? If you just...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
New York Times Puts the Spotlight on Progress in Marfan Research
In the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than...
Four Questions to Ask Your Family Over the Holidays
When is the most common time of the year for families to get together under one roof? That's...
14th Annual Tommy Tant Memorial Surf Classic benefits The Marfan Foundation
The 14th Annual Tommy Tant Memorial Surf Classic presented by Nautica returns to Flagler Beach,...
New Survey Finds One in Five Patients Had Surgery Before Diagnosis
One in five people with Marfan syndrome had some form of surgery before they were diagnosed with...
Health Insurance Marketplace: New Options for Accessible, Affordable Healthcare
Many people in our Marfan syndrome and related disorders agree: securing affordable healthcare is...
School’s in Session: What Better Time to Adopt a School!
If you have school-aged children with Marfan syndrome or a related disorder, you know how...
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