Register for our 40th Conference
We are thrilled to invite you to the 40th Marfan Foundation Conference, happening July...
News from
The Marfan Foundation
The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
“Together, We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness
"Together, we are stronger!" Marfan Europe Network (M.E.N.) and Contactgroep Marfan...
Help & Resource Center FAQs: Top 5 Questions Answered:
Started in 1992, the Foundation’s Help & Resource Center reaches more than 5,000 people...
Recent Symposiums Deepen Connections & Knowledge
Three symposiums were held this autumn geared toward helping community members connect with one...
Mercy Asylum: Creating VEDS Awareness One Scare at a Time!
What do you get when you mix a passion for paying it forward, with a love for haunted houses, and...
Connect With Community Your Way
The Foundation's schedule of events during fall and early winter offers so many chances to connect...
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Together, We Can Know the Signs
and Fight for Victory
