Social Security’s Expanded Compassionate Allowances Matter for Families Living with Neonatal Marfan Syndrome
On August 12, the Social Security Administration (SSA) announced an update to its compassionate...
News from
The Marfan Foundation
Foundation Volunteers Convene Expert Group that Releases First-Ever AHA Pediatric Aortopathy Scientific Statement
August 12th, 2024, became a historic day for the genetic aortic and vascular conditions...
2024 Community-Curated Fashion Guide Released
We know that shopping for clothes that look and feel great can be challenging, particularly for...
Welcome Nurse Stephanie
The Marfan Foundation is pleased to welcome Stephanie Amdur-Clark, our new Help and Resource...
2024 Global Virtual Conference Recap
Our 2024 Global Virtual Conference connected people living with genetic aortic and...
2024 CME Symposium for Physicians Coming to Puerto Rico in October
Registration is now open for Marfan, Loeys-Dietz, and VEDS Symposium 2024: The Latest on Diagnosis...
StuffThatWorks and The Marfan Foundation to Engage in Pilot Program
Joint efforts will form best practices for non-profit health organizations to leverage patient...
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