Honoring Lucas: A Family’s Mission to Raise Loeys-Dietz Syndrome Awareness
Note: This story discusses loss of a young person’s life due to a genetic aortic...
News from
The Marfan Foundation
Comedy, Community, and Marfan Awareness: Liam Nelson on Netflix’s Star Search
Comedian Liam Nelson, who has been part of the Marfan Foundation family since his early teens,...
Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives
Updated May 2026: To support Marfan syndrome awareness, learn the signs, and...
Remembering Raymond John Chevallier
With deep sadness, the Marfan Foundation announces the passing of Raymond Chevallier -...
A Look Back at 2025: Advancing Marfan and Genetic Aortic & Vascular Conditions Research with $1.44 Million in New Grants
Throughout 2025, The Marfan Foundation continued its longstanding commitment to accelerating...
Team Victory Makes Strides at Berlin and New York City Marathons
Shining a Global Spotlight on Marfan, Loeys-Dietz, Vascular Ehlers-Danlos, and Stickler...
Cincinnati Regional Symposium Brings Experts and Families Together
On October 25, the Marfan Foundation and Cincinnati Children’s Hospital Medical...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
