Marfan Foundation President and CEO Michael Weamer Receives Metro NYSAE Lifetime Achievement Award
The Marfan Foundation is pleased to share that President and CEO Michael L. Weamer has been...
News from
The Marfan Foundation
Be With Your Marfan Foundation Family: Walk for Victory 2026-2027
"Everyone there just gets it." That's the number thing we...
Celebrating 45 Years of the Marfan Foundation: Heartworks NYC 2026
Honoring Heart, Hope, and Progress The 26th Annual Heartworks fundraising gala in New York...
Beyond the Aorta: Dissections Throughout the Body
When people hear the words “dissection,” they often think of the aorta. It’s the...
A World Community Comes Together: Marfan Foundation 2026 Global Virtual Conference
The Marfan Foundation’s 2026 Global Virtual Conference connected individuals and...
A New Era in Loeys-Dietz Syndrome: Personalized Care for a Complex Condition
More than two decades after Loeys-Dietz syndrome (LDS) was first identified, an updated...
Rosemarie Nania: VEDS advocate, and community “Hero with a Heart”
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
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