Op-Ed: As We Remember Jonathan Larson, We Urge Everyone to Know the Signs and Save Lives
Updated May 2026: To support Marfan syndrome awareness, learn the signs, and...
News from
The Marfan Foundation
Remembering Raymond John Chevallier
With deep sadness, the Marfan Foundation announces the passing of Raymond Chevallier -...
A Look Back at 2025: Advancing Marfan and Genetic Aortic & Vascular Conditions Research with $1.44 Million in New Grants
Throughout 2025, The Marfan Foundation continued its longstanding commitment to accelerating...
Team Victory Makes Strides at Berlin and New York City Marathons
Shining a Global Spotlight on Marfan, Loeys-Dietz, Vascular Ehlers-Danlos, and Stickler...
Cincinnati Regional Symposium Brings Experts and Families Together
On October 25, the Marfan Foundation and Cincinnati Children’s Hospital Medical...
New AI-Powered Marfan Foundation Community Companion enables 24/7 Q&A
Custom GPT provides on-demand answers The Marfan Foundation is pleased to announce the...
“I felt at peace once it was done.” FreeWill estate-planning tool offered
How One Family Found Security Through a Free Foundation Resource ADVISORY: Please...
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