Marfan and Related Conditions Community Invited to Participate in Hill Day
The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome...
Category: Events
Legislative Action Alert: Urge Responsible Healthcare Reform
The 115th Congress and the incoming administration have made it a priority to “repeal and...
The Marfan Foundation Launches Marfan Awareness Month on February 1 with Multi-pronged #IKNOWMARFAN Campaign
Social media and grassroots events planned to raise awareness of the signs of Marfan and related...
The Marfan Foundation to Honor Scientist Christine Gurnett, MD, PhD, and Marfan Clinic Nurses and Staff at Heartworks St. Louis Gala on March 4
Christina Gurnett, MD, PhD, Associate Professor of Neurology, Washington University School of...
The Marfan Foundation Presents Awards at Annual Conference
In recognition of the significant contributions of volunteers throughout the country, The Marfan...
The Marfan Foundation Raises More Than $1.2 Million at Heartworks Gala to Support Life-Saving Programs and Services
The Marfan Foundation announced today that it raised more than $1.2 million last night at its 16th...
The Marfan Foundation Makes an Impact on Capitol Hill
On January 13, The Marfan Foundation was highlighted on Capitol Hill with a most impressive...
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