Rosemarie Nania: VEDS advocate, and community “Hero with a Heart”
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
Know. Connect. Thrive.
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
This spring, in the heart of Paris, twelve women from across the U.S. came together...
From European fundraising marathons to major international meetings, we’re advancing...
“I felt like Mike Tyson punched me in the chest. That’s the best way I can describe it,”...
Note: This story discusses loss of a young person’s life due to a genetic aortic...