A New Era in Loeys-Dietz Syndrome: Personalized Care for a Complex Condition
More than two decades after Loeys-Dietz syndrome (LDS) was first identified, an updated...
Know. Connect. Thrive.
More than two decades after Loeys-Dietz syndrome (LDS) was first identified, an updated...
Hoan and Danette Nguyen remember being confused when their daughter, Olivia, “suddenly...
Doré Schubert knows well the emotional toll of living with chronic pain. Diagnosed with Marfan...
Doré Schubert was diagnosed with Marfan syndrome at age two after experiencing a dislocated...
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
This spring, in the heart of Paris, twelve women from across the U.S. came together...
From European fundraising marathons to major international meetings, we’re advancing...