Living with Marfan Syndrome: How Doré Schubert Turned Years of Medical Challenges into a Career in Mental Health
Doré Schubert was diagnosed with Marfan syndrome at age two after experiencing a dislocated...
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Doré Schubert was diagnosed with Marfan syndrome at age two after experiencing a dislocated...
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
This spring, in the heart of Paris, twelve women from across the U.S. came together...
From European fundraising marathons to major international meetings, we’re advancing...
“I felt like Mike Tyson punched me in the chest. That’s the best way I can describe it,”...
Note: This story discusses loss of a young person’s life due to a genetic aortic...