After 10 Operations, Teenager Olivia Nguyen Pays It Forward by Volunteering and Raising Awareness of Loeys-Dietz Syndrome
Hoan and Danette Nguyen remember being confused when their daughter, Olivia, “suddenly...
Know. Connect. Thrive.
Hoan and Danette Nguyen remember being confused when their daughter, Olivia, “suddenly...
Doré Schubert knows well the emotional toll of living with chronic pain. Diagnosed with Marfan...
Doré Schubert was diagnosed with Marfan syndrome at age two after experiencing a dislocated...
How does Roe Nania feel about being named a ‘Hero with a Heart’ as part of the Marfan...
This spring, in the heart of Paris, twelve women from across the U.S. came together...
From European fundraising marathons to major international meetings, we’re advancing...
“I felt like Mike Tyson punched me in the chest. That’s the best way I can describe it,”...