Miracles Run In My Family
My father, my brother, and I each had aortic root and valve replacements at 26 years old. Anyone...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Let’s Just Get Checked Out
I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...
Foundation Announces $500,000 In New Research Grants
Thanks to the generosity of our supporters, the Foundation awarded five new research grants. These...
New Director Announced for Loeys-Dietz Syndrome Foundation
Stacey Watson has been selected by The Marfan Foundation to join its team as Director of the...
Running with Purpose: Jenny Braverman
Running this marathon on behalf of my family and others affected by Marfan Syndrome and related...
“After a Lifetime, I Get to Be Proactive”
A Marfan journey from aortic dissection to empowerment Editor's note, 3/6/24: We were...
In Memory of Chris Heaney
This week, we sadly bid farewell to a true pillar of our Marfan community, Christopher Heaney. In...
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