Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Announcing 2023-2024 Foundation Programs
As promised in July, we are pleased to announce our plans for in-person programming and events...
Announcing Atlanta Conference 2025, Virtual Global Conference 2024
Thank you to everyone who made our 2023 Chicago Conference an enriching experience! Our...
Foundation Expands Mental Health Resources
The Foundation has launched a new Mental Health section on its website as part of a plan to...
A Teen’s Perspective: Finding a Community at Conference
As a teen with a connective tissue condition, building relationships with others who “get” you...
New Director Named for The VEDS Movement
Ryan Rodarmer, MS, has been selected by The Marfan Foundation to lead The VEDS...
A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
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