HeartWorks Chicago
Please join Chairs James & Jess Milburn and their committee for the first HeartWorks Chicago...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
My Doctor Knew Me – He Knew Amy
In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...
Las inscripciones están abiertas para la Cumbre sobre el Síndrome de Marfan y Condiciones Afines
Ya están abiertas las inscripciones para la Cumbre de la Fundación Marfan: Información...
Three Keys to a Positive Outcome
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Tick, Tick… Boom! On Netflix Continues the Legacy of Jonathan Larson
Nearly 25 years after Jonathan Larson lost his life to an undiagnosed aortic dissection, believed...
The Marfan Foundation Launches New Website
The Marfan Foundation launched its new website (marfan.org) today to make medical information...
The Marfan Foundation Names Andrew Toy an Advisor to its Board of Directors
The Marfan Foundation is pleased to announce the addition of Andrew Toy, President and Chief...
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