The Marfan Foundation to Honor Surgeon Dr. Charles Huddleston and Community Leaders Robert and Donna Plummer at Heartworks St. Louis on March 5
Charles Huddleston, MD, Professor of Surgery at St. Louis University School of Medicine and SSM...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Makes an Impact on Capitol Hill
On January 13, The Marfan Foundation was highlighted on Capitol Hill with a most impressive...
New Mobile App for Healthcare Professionals Facilitates Diagnosis of Marfan Syndrome and Related Disorders
The Marfan Foundation announced today the launch of Marfan DX, a mobile phone application to aid...
Legislative Action Alert: Educational Briefing on Marfan Syndrome and Heritable Connective Tissue Disorders
The Marfan Foundation is asking its Marfan syndrome and related disorders community to ask their...
7 Simple Fundraising Tips You Can Use Today
“Where there is unity there is always victory.” –Publilius Syrus Our nationwide Walk...
The Marfan Foundation Opens its First-Ever “Thrift Store” on WebThriftStore.com
The Marfan Foundation today announced that it has teamed up with WebThriftStore.com to launch an...
Northwestern Medicine and Ann & Robert H. Lurie Children’s Hospital of Chicago Co-Host The Marfan Foundation’s 31st Annual Family Conference; Isaiah Austin and Ann Reinking to be Featured
Northwestern Medicine and Ann & Robert H. Lurie Children’s Hospital of Chicago are...
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