Keys to a Full Life: Barcelona Symposium Brings Mission to our Marfan Foundation Family in Spain
Marfan Foundation community member Monica (left) with her sister Mercedes. On October 3, 2026,...
Category: Events News
Be With Your Marfan Foundation Family: Walk for Victory 2026-2027
"Everyone there just gets it." That's the number thing we...
Team Victory Goes the Distance at the Paris Marathon
This spring, in the heart of Paris, twelve women from across the U.S. came together...
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
More than 700 People Take Part in 2026 South Florida Walk for Victory
A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in...
Team Victory Makes Strides at Berlin and New York City Marathons
Shining a Global Spotlight on Marfan, Loeys-Dietz, Vascular Ehlers-Danlos, and Stickler...
Cincinnati Regional Symposium Brings Experts and Families Together
On October 25, the Marfan Foundation and Cincinnati Children’s Hospital Medical...
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