The Jonathan Larson Project Comes to the Orpheum Theater, NYC
The Jonathan Larson Project is a new musical that celebrates the dozens of unheard songs,...
Category: News
“Together, We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness
"Together, we are stronger!" Marfan Europe Network (M.E.N.) and Contactgroep Marfan...
Help & Resource Center FAQs: Top 5 Questions Answered:
Started in 1992, the Foundation’s Help & Resource Center reaches more than 5,000 people...
Recent Symposiums Deepen Connections & Knowledge
Three symposiums were held this autumn geared toward helping community members connect with one...
Mercy Asylum: Creating VEDS Awareness One Scare at a Time!
What do you get when you mix a passion for paying it forward, with a love for haunted houses, and...
Connect With Community Your Way
The Foundation's schedule of events during fall and early winter offers so many chances to connect...
Marfan Awareness Month 2024 Wins PR Daily Awards for Social Media & Engagement, Innovation Mention
Thanks to the heartfelt and diverse ways in which our community members shared their everyday...
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