Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
Category: Popular
Mercy Asylum: Creating VEDS Awareness One Scare at a Time!
What do you get when you mix a passion for paying it forward, with a love for haunted houses, and...
Marfan Foundation: A May of Self-Care & Thanks During Mental Health Awareness Month 2024
During Mental Health Awareness Month (and every day!), we're here to help empower you to live your...
Help & Resource Center Director Jan Lynch Moving to Part-Time Role, Foundation Will Expand Center Staff Team
Director of The Marfan Foundation's Help & Resource Center Janice "Jan" Petrella Lynch, MSN,...
Foundation’s Everest Award Funds Research for Potential New Aortic Dissection Prevention and Treatment
The Marfan Foundation has granted its second Everest Award to a team of researchers led by Julie...
VEDS Teams are Historic Top 3 at 2024 Tampa Walk for Victory
For the first time in The Marfan Foundation's Walk for Victory (WFV) history, the top three...
Submit Videos: #marfanrealreels
Marfan Awareness Month 2024 is just around the corner in February. This year, we want to tell your...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
