“Together We Are Stronger”: Foundation & Marfan Europe Network Align for Awareness
“Together we are stronger!” Marfan Europe Network (M.E.N.) and Contactgroep Marfan...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Scan to Save: Growing up with Marfan, being diagnosed with cancer
Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...
Help & Resource Center FAQs: Top 5 Questions Answered:
Started in 1992, the Foundation’s Help & Resource Center reaches more than 5,000 people...
Recent Symposiums Deepen Connections & Knowledge
Three symposiums were held this autumn geared toward helping community members connect with one...
Connect With Community Your Way
The Foundation's schedule of events during fall and early winter offers so many chances to connect...
Camp Victory 2024 Brings Smiles
Six years ago, the Foundation began offering Camp Victory to provide a fun, safe environment where...
Marfan Awareness Month 2024 Wins PR Daily Awards for Social Media & Engagement, Innovation Mention
Thanks to the heartfelt and diverse ways in which our community members shared their everyday...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
