“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Why Clinical Trials Matter for the VEDS Community
The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...
Mental Health Awareness Month 2025
We're here for you every day of the year with support groups, webinars, Conference and other...
The Marfan Foundation Named One of the 50 Best Nonprofits to Work For Nationally by The NonProfit Times
The Marfan Foundation was recently named 33 of only 50 non-profits chosen across the...
Linzy’s Story: Dislocated lenses, Marfan diagnosis, multiple procedures, and career-affirming understanding
Linzy Brown's story of life with Marfan syndrome is deeply connected to her eyes and heavily...
2025 Marfan and Loeys-Dietz Awareness Months Reach 990K People
Thanks to the outstanding support of our community members, Marfan Awareness Month and...
“Marfan just happens to be a part of me…” Andrea’s Story
Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest...
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