New AI-Powered Marfan Foundation Community Companion enables 24/7 Q&A
Custom GPT provides on-demand answers The Marfan Foundation is pleased to announce the...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation named a 2025 Best Place to Work for Women by Best Companies Group
Best Companies Group has named the Marfan Foundation a recipient of an inaugural 2025 Best...
Connective Issues, Marfan Foundation Recognized at 2025 PR Daily Awards
On Friday, September 26, the Marfan Foundation was recognized among only five non-profit...
“I still have so much to live for”: healing after Marfan-related aortic surgeries
Guest Blogger Rosa Adriana Felix is an aortic surgery survivor. She shares her story in her own...
Mi Historia con el Síndrome de Marfan y la Disección Aórtica
My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...
From Survivor to Advocate and a Roar for Aortic Awareness
Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...
Op-Ed: STAT Action Saved My Life, It Could Save Yours
At 38, I nearly lost everything in an instant. Marfan Foundation Board member and...
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