Nuestro camino con el Síndrome Marfan
Mi nombre es Mary de Arias de nacionalidad peruana, radico junto a mi familia en...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
GenTAC Alliance becomes Genetic Aortic Network, a Division of the Marfan Foundation
In a move aimed at both emphasizing the importance of the Marfan Foundation's "science arm" and...
Community Member, Physical Therapist
Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...
“I Just Feel at Home Here”: The Marfan Foundation’s 40th Conference Empowers Attendees to #KnowConnectThrive
From July 10 to 13, attendees from 44 states and 10 countries gathered in Atlanta for the...
600+ Set to Gather for Marfan Foundation’s 40th Conference
Record Number of Scholarships Offered Thanks to Community Support ATLANTA, GA, July 10-13...
“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
Why Clinical Trials Matter for the VEDS Community
The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...
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