The Marfan Foundation named a 2025 Best Place to Work for Women by Best Companies Group
Best Companies Group has named the Marfan Foundation a recipient of an inaugural 2025 Best...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Connective Issues, Marfan Foundation Recognized at 2025 PR Daily Awards
On Friday, September 26, the Marfan Foundation was recognized among only five non-profit...
“I still have so much to live for”: healing after Marfan-related aortic surgeries
Guest Blogger Rosa Adriana Felix is an aortic surgery survivor. She shares her story in her own...
Mi Historia con el Síndrome de Marfan y la Disección Aórtica
My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...
From Survivor to Advocate and a Roar for Aortic Awareness
Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...
Op-Ed: STAT Action Saved My Life, It Could Save Yours
At 38, I nearly lost everything in an instant. Marfan Foundation Board member and...
Marfan Foundation Issues Updated “Know the Signs” Infographic Ahead of Aortic Dissection Awareness Month in September
In September, the Marfan Foundation shines a light on the risk of fatal aortic dissection - a...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
