“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
Know the Signs, Fight for Victory
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...
We're here for you every day of the year with support groups, webinars, Conference and other...
The Marfan Foundation was recently named 33 of only 50 non-profits chosen across the...
Linzy Brown's story of life with Marfan syndrome is deeply connected to her eyes and heavily...
Thanks to the outstanding support of our community members, Marfan Awareness Month and...
Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest...