New Survey Finds One in Five Patients Had Surgery Before Diagnosis
One in five people with Marfan syndrome had some form of surgery before they were diagnosed with...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Health Insurance Marketplace: New Options for Accessible, Affordable Healthcare
Many people in our Marfan syndrome and related disorders agree: securing affordable healthcare is...
School’s in Session: What Better Time to Adopt a School!
If you have school-aged children with Marfan syndrome or a related disorder, you know how...
vic • to • ry
[vik-tuh-ree, vik-tree] A success or superior position achieved against any opponent,...
Aging with Marfan Syndrome: 5 Common Questions
Well, for many people, this just brings up more questions. Living longer is great, but aging comes...
Blood Test on the Horizon to Detect Aortic Aneurysm and Dissection as Researchers Identify Key Biomarkers Associated with Lethal Condition
A team of investigators has developed an innovative blood test that may provide a faster, simpler...
Common Blood Pressure Drug Reduces Aortic Enlargement in Marfan Syndrome
A common drug that is used to treat high blood pressure in the general population has been found...
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