Announcing Atlanta Conference 2025, Virtual Global Conference 2024
Thank you to everyone who made our 2023 Chicago Conference an enriching experience! Our...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Foundation Expands Mental Health Resources
The Foundation has launched a new Mental Health section on its website as part of a plan to...
A Teen’s Perspective: Finding a Community at Conference
As a teen with a connective tissue condition, building relationships with others who “get” you...
New Director Named for The VEDS Movement
Ryan Rodarmer, MS, has been selected by The Marfan Foundation to lead The VEDS...
A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
Foundation Receives Mental Health Impact Grant from Global Genes
The Marfan Foundation is honored to receive a grant from Global Genes to support mental health...
Registration is Open for The Marfan Foundation’s 39th Conference in Chicago, July 13-16
The Marfan Foundation, in conjunction with Ann & Robert H. Lurie Children's Hospital of...
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