The Marfan Blog

Four Questions to Ask Your Family Over the Holidays

When is the most common time of the year for families to get together under one roof? That's...

Diagnosis November 13, 2013February 25, 2021

Healthcare Management October 1, 2013February 25, 2021

Health Insurance Marketplace: New Options for Accessible, Affordable Healthcare

Many people in our Marfan syndrome and related disorders agree: securing affordable healthcare is...

Awareness, Volunteer September 27, 2013February 25, 2021

School’s in Session: What Better Time to Adopt a School!

If you have school-aged children with Marfan syndrome or a related disorder, you know how...

Community, Conference September 16, 2013January 31, 2024

vic • to • ry

[vik-tuh-ree, vik-tree] A success or superior position achieved against any opponent,...

Know the Signs September 16, 2013February 25, 2021

Aging with Marfan Syndrome: 5 Common Questions

Well, for many people, this just brings up more questions. Living longer is great, but aging comes...

Awareness, Community, Volunteer September 3, 2013February 25, 2021

Running for Those Who Can’t

Why did I subject myself to the torment of a half marathon along the unforgiving pavement of Lake...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory