5 Things You Can Do for Marfan Awareness Month
Do you still get blank stares from people when you say that you have Marfan syndrome? How many...
The Marfan Blog
The First 6 Things You Should Do When Diagnosed with Marfan Syndrome
It’s the beginning of the new year. Is it the beginning of your Marfan journey? If you just...
What the Marfan Community Means to Us
When my younger daughter Cassie turned one almost six years ago, I thought we'd ended the craziest...
At This Moment of Opportunity, I’m Thankful for You.
When I started my journey with The Marfan Foundation 19 years ago, we were up against so...
Four Questions to Ask Your Family Over the Holidays
When is the most common time of the year for families to get together under one roof? That's...
Health Insurance Marketplace: New Options for Accessible, Affordable Healthcare
Many people in our Marfan syndrome and related disorders agree: securing affordable healthcare is...
School’s in Session: What Better Time to Adopt a School!
If you have school-aged children with Marfan syndrome or a related disorder, you know how...
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