What the Marfan Community Means to Us
When my younger daughter Cassie turned one almost six years ago, I thought we'd ended the craziest...
The Marfan Blog
At This Moment of Opportunity, I’m Thankful for You.
When I started my journey with The Marfan Foundation 19 years ago, we were up against so...
Four Questions to Ask Your Family Over the Holidays
When is the most common time of the year for families to get together under one roof? That's...
Health Insurance Marketplace: New Options for Accessible, Affordable Healthcare
Many people in our Marfan syndrome and related disorders agree: securing affordable healthcare is...
School’s in Session: What Better Time to Adopt a School!
If you have school-aged children with Marfan syndrome or a related disorder, you know how...
vic • to • ry
[vik-tuh-ree, vik-tree] A success or superior position achieved against any opponent,...
Aging with Marfan Syndrome: 5 Common Questions
Well, for many people, this just brings up more questions. Living longer is great, but aging comes...
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