Meet Your Gene: An Introduction to the Marfan Gene and Current Research
Roanne Weisman, a healthcare writer from Boston who has Marfan syndrome and long-time member of...
Blog Category: Community
When it Feels Like Marfan is Winning
About six months ago, I made the decision to “retire” from my career as a full time nanny at...
Sinclaire’s Story from the Heart
Most people affected by Marfan syndrome experience a life-changing moment when they or a loved one...
Linh Ngo: My Marfan Story
Part 1 of Linh Ngo’s Marfan story is reprinted here with permission from the author. You can...
When People Don’t Get It
As an individual with Marfan syndrome, you've most likely had that awkward encounter with a...
College with Loeys-Dietz syndrome
College can be one of the most fun periods in a person’s life, yet it can also be one of the...
Jamie Efurd – My Marfan Story
“Make it through the door, Jamie. Make it through the door.” Those were my first thoughts as...
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