To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
Blog Category: Diagnosis
Q & A with Jan Lynch, MSN, RN: Director of Help & Resource Center
Jan Lynch, MSN, RN, joined The Marfan Foundation staff in April as the Director of the Help &...
Meet Your Gene: An Introduction to the Marfan Gene and Current Research
Roanne Weisman, a healthcare writer from Boston who has Marfan syndrome and long-time member of...
Sinclaire’s Story from the Heart
Most people affected by Marfan syndrome experience a life-changing moment when they or a loved one...
What Fulfills You?
When you think about your life as an able-bodied person, what fulfills you? Does going to work and...
From the Journal of Owen Gray: 2015 Annual Family Conference
Owen Gray, 14, was diagnosed with Marfan syndrome in the summer of 2014. He was excited about...
Victoria Falcone – My Marfan Story
“With pain comes strength.” This is a quote that I had found online three years ago and...
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