To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
Blog Category: Research
Physical Therapy: Myths and Facts
People everywhere are experiencing the transformative effect physical therapy can have on their...
Pregnancy and Marfan Syndrome: An Update from Melissa L. Russo, MD
Marfan syndrome is a connective tissue disorder that has effects on the heart, blood vessels,...
Q & A with Jan Lynch, MSN, RN: Director of Help & Resource Center
Jan Lynch, MSN, RN, joined The Marfan Foundation staff in April as the Director of the Help &...
Meet Your Gene: An Introduction to the Marfan Gene and Current Research
Roanne Weisman, a healthcare writer from Boston who has Marfan syndrome and long-time member of...
Meet a Marfan Researcher – Silvia Smaldone, PhD
One of the most satisfying aspects of being part of this community is meeting the people who work...
At This Moment of Opportunity, I’m Thankful for You.
When I started my journey with The Marfan Foundation 19 years ago, we were up against so...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
