The Marfan Foundation Receives RARE Champion of Hope – Collaborations in Advocacy Award from Global Genes
Global Genes honors the pioneering achievements of individuals andcorporations in the rare disease...
Category: Announcements
The Marfan Foundation Lauds NBA for Screening that Detects Marfan Syndrome, a Life-Threatening Condition, in Potential First Round Draft Pick
PORT WASHINGTON, NY, June 22, 2014 -- The Marfan Foundation lauds the NBA for its thorough...
The Marfan Foundation and Johns Hopkins Hospital Co-Host the 30th Annual Family Conference for People with Marfan and Related Disorders, July 10-13, in Baltimore
PORT WASHINGTON, NY, June 19, 2014 — The Marfan Foundation and Johns Hopkins Hospital are...
The Marfan Foundation Raises $1 Million at its 14th Annual Heartworks Gala
PORT WASHINGTON, NY, April 18, 2014 -- The Marfan Foundation is thrilled to announce that it...
The Marfan Foundation Adds Experts to its Professional Advisory Board
PORT WASHINGTON, NY, March 26, 2014 – The Marfan Foundation is pleased to announce the addition...
The Marfan Foundation to Honor Angela M. Sharkey, MD, Pediatric Cardiologist, at Heartworks St. Louis, March 1
PORT WASHINGTON, NY, February, 6, 2014 – Angela M. Sharkey, MD, Pediatric Cardiologist at SSM...
President & CEO of The Marfan Foundation Announces Two-Year Transition Plan Leading to Her Retirement
It was exactly 20 years ago that I embarked on the most rewarding journey in my professional life,...
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