Announcing the #MarfanVictoryChallenge!
February is Marfan Awareness Month, a time for all of us in the community to escalate our efforts...
News from
The Marfan Foundation
The VEDS Movement Launches TheVEDSMovement.org
The VEDS Movement, a new division of The Marfan Foundation, is excited to announce the launch of...
Foundation Launches 2020 in 2020 Backpack Health Campaign to Increase Participation in Patient Registry
The Marfan Foundation is announcing 2020 in 2020 Backpack Health Campaign, a challenge to its...
The Marfan Foundation Awards $775,000 in Research Grants
The Marfan Foundation is proud to announce that it is awarding $775,000 to eight...
The Marfan Foundation Adds Vascular Ehlers-Danlos Syndrome Division
The Marfan Foundation, which saves lives and improves the quality of life for people with Marfan,...
Working With Your School Nurse
For parents of a child with a connective tissue condition, worrying is a daily habit. The...
The Marfan Foundation Launches Volunteers for Victory
When volunteers lead the way, great things happen! After hearing from many in our community...
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