The Marfan Foundation Adds Vascular Ehlers-Danlos Syndrome Division
The Marfan Foundation, which saves lives and improves the quality of life for people with Marfan,...
News from
The Marfan Foundation
Working With Your School Nurse
For parents of a child with a connective tissue condition, worrying is a daily habit. The...
The Marfan Foundation Launches Volunteers for Victory
When volunteers lead the way, great things happen! After hearing from many in our community...
Recording of Conference Medical Presentations Now Available
This year, for the first time, the Foundation livestreamed the medical presentations that were...
The Marfan Foundation Welcomes Vascular Ehlers-Danlos Community to its 35th Annual Conference, Held in Association with Texas Children’s Hospital
The Marfan Foundation, in association with Texas Children’s Hospital, will hold its 35th...
The Marfan Foundation Statement on Celiprolol
Statement from The Marfan Foundation with respect to FDA rejection of celiprolol for exclusive use...
Dr. Tirone David, Dr. Emile Bacha, and the Kramer Family to be Honored at 2019 Heartworks
The Marfan Foundation is recognizing an outstanding group of honorees at its 2019 HeartWorks gala...
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